Hello, everyone! If you are visiting our website for the first time, PLEASE stop and read this post! I want to tell you why I started this blog, how to use this blog if you are starting out, and why I have not posted on here in so long.
IF you were to contact me and you were just starting this diet for your child or yourself, I would tell you to go to our “getting started” section and read EVERYTHING! I tried putting my experience as a mom with a young child on this diet almost 7 years ago and from talking to other moms (LOTS of other moms) into this blog so it would continue to help others for years! (when my memory fails me with all of the details you will need)
I no longer post on this blog BECAUSE my son is almost 17 now and is no longer on the diet. He was diagnosed “officially” with Crohn’s Disease at age 10 and we were offered this diet as a test study. He was on the diet “strictly” for 3.5 years and has been off since then. After his dying off stage he was symptom free and drug free and still is to this day.
I started this blog because we were the 2nd patient to be offered the test study diet at The Children’s Hospital in Atlanta with Dr. Stanley Cohen (Dr. Gold is the other doctor here that does the SCD Diet.). They didn’t know much about the diet and when I do something I do it 100%. They started giving my number out to everyone and I eventually was on the phone ALOT! So I started this blog so I could share what everyone was wanting and NEEDING to hear to encourage them and break it down easily in a “mom’s version”. Please note I have not had any medical schooling, this entire blog is what I learned and my opinion from talking to SO many moms and hearing results.
If you were to call me today and just starting out, I would tell you this, as I have told moms, as well as adults that have contacted me, to get started. I never have recommended or had anyone start with the different stages in the book. We didn’t read the book to get started, we jumped right in then I had time to read the book. I have always told everyone to print off the legal/illegal list and highlight all of the foods that you already eat all of the time. Week one concentrate on making your diet just those familiar foods. Yes, you need to get started on the yogurt. It will be nasty, FYI, as first, but you will learn to fix it to your liking. (my son ALWAYS had it in an orange juice, frozen banana smoothie) The next week look through the list and choose some other foods you don’t normally eat and start adding them. I STRONGLY RECOMMEND keeping STRICT food diary!!!!! Everything you put in your mouth, meds, and going to the bathroom, and how you feel! I eventually learned with my son that after he ate something that irritated him he wouldn’t feel it for 3-4 days after he ate it. From doing this we learned he couldn’t eat fresh pineapple, but the dehydrated pineapple didn’t bother him. One mom eventually figured out from the diary her daughter could not have bananas. Be patient! And you will eventually figure it out! ANOTHER HUGE TIP: Cook in BULK! Eating out does not make it easy on this diet! Having handy foods quick is what is going to make this a success! When you are grilling chicken or burgers – have a bulk package of meat ready to throw on there when you are finished with dinner and cook it and put it in the freezer to pull out quickly! Cook bread once a month and make 3 batches and freeze. AND I PROMISE – making the yogurt sounds AWFUL at first but one day it will be just like boiling water and will come easy!
I HIGHLY recommend going through the blog and especially reading all of the “getting started” posts! I have tried to share lots of great recipes I found over the years! Good luck! And remember you aren’t in this alone! There have been moms before you fight the struggle to get started and YES it is hard! But seeing your child heal and knowing you put forth the HARD effort… priceless! It’s not cheap! But neither is meds! And need I remind you my son has been symptom free and drug free for even years after being off the diet. The SCD Diet is an option you CAN do to help your child/yourself with their disease. “Option” – you have to make the decision to do it and DON’T CHEAT!
GOOD LUCK! YOU CAN DO IT!