This is Cameron at Camp Oasis, a summer camp specifically for children with Crohn’s and colitis. Because of the support and research of the CCFA, Cameron was able to attend this life-changing camp. My youngest son Cameron was diagnosed with Crohn’s disease in 2011 and he’s now well enough to be a Teen Team Challenge Honored Hero and participate in a half marathon with Team Challenge on July 11th in Portland, Maine. I can’t even begin to express how absolutely devastating it was as a parent to spend so many nights in the hospital, watch him undergo painful procedures, endure sickening side-effects from drugs and worst of all watch him go from a strong athletic happy-go-lucky kid to one sidelined with weakness and pain. However, with your generous donation, you can help make attending Camp Oasis a possibility for other children suffering with the same IBD. PLEASE help us by visiting online.ccfa.org/site/TR/TeamChallenge/Chapter-Georgia…… and donating generously to the Crohn’s Colitis Foundation of America. Please make your donation by May 17th, my personal fundraising deadline. Thank you and God Bless!!
Hope everyone has had a great Spring Break! I am going to start working on the Kid’s blog! Excited!
I was hoping you moms could give me some ideas for it. I’m not perfect and knowledgeable on the whole blog thing but hopefully I can get it set up in the next couple of weeks.
Any ideas would be helpful. Please don’t be upset if I don’t get your idea on the blog. Lol. I might not know how to do it. I was HOPING to see if I can figure out how to fix the blog to where all of the kids can post on the blog. For example, my blog now only I can post. If someone else wants to share something they have to email me and I copy it and post it. I think this would help the children all feel like it is their blog also and they will share more. I do plan on watching the blog closely and would appreciate help from other moms as well. I will make a note on the blog that an adult will be monitoring it. But, I think it would be a very good idea NOT to tel your children you look at it , as I think they would be cautious and reserved at being open and making friends here.
What are your thoughts and ideas? :)
I had an idea pop up today. Just curious what other moms of teenagers thought. My son always seems like none of his friends understand his diet and right now after having to start the diet again he seems very down and making comments that he doesn’t have any friends. I have heard some moms out there say some of the same things about their teens. I was curious if I started a blog for Justin to post and share his thoughts and favorite foods/recipes if you think your children would like it and participate? It would give them a place to go like we do to not feel like we are alone. I will set him up an email address where they can share things and we can post their comments. I was just wondering if any of you moms thought this would be good for your children. We are always saying how great it is here to hear that we are not alone, and that we wish we could get our kids together. I was hoping this might be something great for our children! I can only imagine how they feel if us moms are feeling alone!
Comments please! Thanks!
Hello, everyone. I am finally sitting down and sharing our report for my son, Justin’s, four year pill cam results since being on the SCD Diet. If you have been following my blog for a while you know my son is now 14 years old. He was diagnosed at age 10 with Crohn’s Disease. He started the SCD Diet test study with our doctor, Stanley Cohen, at GI Care For Kids at Children’s Hospital in Atlanta, Georgia. We were thankful our doctor gave us a choice rather than put our son onto medication. My son took some vitamins and probiotics when he was on an antibiotic but was never put on any medications after he was diagnosed with a mild case of Crohn’s. He has been symptom free and medication free since the “dying off stage” of the SCD Diet (as long as he didn’t cheat on the diet). After 3 years on the diet, and being a teenager, Justin started cheating. Justin’s father and I, as well as his doctor, to let him choose his foods and try to eat healthy but off the diet somewhat. But you know how you give a teen-ager an inch and they take the mile! Lol. Just had gotten to where he was drinking cokes, sugar candies, etc.
We had a pill cam a couple of weeks ago. Justin’s blood work and stool samples actually came back perfect. But his pill cam results showed that his intestines were showing signs of small ulcers again. They said it was about halfway from when his pill cams were perfect to when he was diagnosed 4 years ago.
Justin has chosen to go back on the diet instead of choosing medications. We are not planning on going onto the diet 100% at this time. We are anxious to see how he does being on the diet majority of the time with some splurges, kind of like he was eating before he went off completely. I was starting to follow the Paleo diet some because it added a few extra items that helped him alot having been restricted for so long (maple syrup, sweet potatoes, natural chocolate chips). Justin is not showing any signs of symptoms. He is still feeling good. So honestly at this time I think he would continue to cheat behind our back if we didn’t give him some room to play around.
Justin has been very upset and mad about this diagnosis and not looking forward to it. We are VERY grateful his he healthy with this disease and it has helped him, but it is hard for him to understand and cooperate when he is so young and hasn’t felt any symptoms or suffered recently to where he remembers. I have talked to some moms whose children have suffered so badly they do not forget and will not cheat on the diet.
We have hopes and are anxious to see how this works for Justin. If being on the diet like this doesn’t help, then we will go back on it strictly.
Thank you for everyone’s concerns. I had hoped to have better news. I will say that after Justin was on the diet for a few years and was eating Paleo and splurging on glutten free pizza and make “wise” cheat choices his insides still looked perfect. There is hope for the future! I hear GREAT results from moms with children on the diet!
Please let me know if you have any questions you would like for me to ask other moms here on the blog or if you have something you would like to share!!! And KEEP UP THE GREAT WORK! We ALL know it is NOT easy!
Just a quick tease of an update for my son, Justin’s, pill cam. I’m nervous to hear the results. The nurse did call yesterday and told us that Justin’s bloodwork was perfect! :) The doctor is supposed to read the pill recording next week. I will let you know! I’m hoping for good results to give each of you hope and I believe it will be an encouragement to keep on doing all of your hard work!
Hello, everyone. I apologize for it being SO long since I have posted. I hope each of you will understand. I know each of you knows how exhausting the diet can be for everyone, especially us moms doing all of the cooking/shopping/planning. For those of you new or catching up, my son, Justin, is 14 years old now and started the diet right before he turned 10. He was “officially” diagnosed with Crohns then. He was lucky his doctor was starting the SCD Diet test study and offered it to us. He has been symptom free and drug free since his “dying off stage” on the SCD Diet. He started sneaking around and cheating on the diet after 3 years. About 6 months ago, I decided to let him decide for himself to go off of the diet. I decided he had to “want” to be on the diet for himself. I could not punish him to stay on the diet or make him do the diet. So at first we let him cheat socially, then he pushed me to cheat more and more to where now he has been off totally. I have tried to get him to watch what he eats and choose foods wisely, but I can’t say that he has done that.
Yesterday we had another yearly pill cam. We are anxiously looking foward to hearing from the doctor the results. I believe so far every child that has been on the test study that got off the diet has starting having symptoms again and had to go back on the diet. Justin has been on the diet the longest on the study so we are anxious to see what we find or hopefully do not find. I will update and let you know as soon as we hear. We also did bloodwork and stool tests. Justin is not and has not shown any symptoms since he has been cheating. He did have a mild case when he was diagnosed.
I continue to encourage each of you to continue on the diet fr your child and hang in there. Please contact me if you ever need to talk and need someone to listen. You are not alone. There are plenty of moms out there that understand! If you ever have any questions or have something you would like for me to post and share with everyone, please email it to me, email@example.com.
I will be posting again soon! Hopefully with good news!
As I am sure all mom’s out there are, I have been busy busy busy! So sorry I haven’t posted in so long! I have two in home businesses and my craft one is doing great and keeping me busy. Basketball has started and all three of my children are playing this year. My oldest, which is a senior this year, had already broken in nose playing. We have an average of 7 games a week between all three. Whew!
Please keep in touch everyone! I ran across this recipe this morning in Facebook and had to share it. Sounds like it would be yummy this time of year. If you get to try it please comment and let us know how you and your child liked it.
How everyone is doing good!
Carrot Cake Bites