Hello everyone! I have finally decided to add a new category to our blog – “AFTER One Year”. I have been trying to decide whether to keep my blog more general for everyone, with helpful tips, encouragement, recipes, etc., or to share my son’s day to day experiences now that we are to our one year mark.
I had one mom ask me how Justin’s one year pill cam went. Dr. Cohen said his intestines were perfect! We have followed the SCD Diet strictly since February 14, 2011. We were VERY excited to see that the hard work paid off! So now that leaves us sitting here wondering what to do now? Do we keep going on the diet for as long as we can hoping it will cure him? Do we add foods back and jeapordize the good work we have done and possibly have to start over? (And we all know how HARD it is getting started!) What foods do we start with? There were LOTS of things to think about!
I am going to use this new category on our blog, “AFTER One Year”, to share with everyone what I try for Justin and what works for us and does not. And if any of the other mom’s out there that are at their one year mark, please send me what you are doing also so we can share with everyone! Please remember that what works for one person, does not mean it will work for another. But by doing this, I hope it will give light to the end of your tunnel working towards your child’s one year mark and help you come up with a plan and give you some ideas when that time comes.
We decided to start adding a few things back into Justin’s diet slowly and see what happened. Justin loves eating healthy, but we know how restricting the diet is!!! I had read somewhere when Justin was first diagnosed that this one Crohn’s patient was limited to rice. I remember in “Breaking The Viscious Cycle” that sugar is not good for you, so I thought rice would be good. Someone pointed out to me that giving a small portion to him one night might not actually cause any side effects. I might need to give it to him a few nights in a row. So I fed him one cup of rice on a Monday, Tuesday and Wednesday night. (I’ve hears that it takes about 3-4 days for the food to go through the system and to cause a reaction.) Exactly three days later, Justin was in the bathroom SCREAMING! His bottom was swollen and red and it hurt badly to go to the bathroom. He said he was staying on the diet and did NOT want to try any new foods! I reasured him that it could have just been this particular food!
To show you how great it is to talk to other mom’s in our group and for us to all communicate and keep in touch, I was sharing this with one of our mom’s, Wendy. She remembered talking to Lucy, from Lucy’s Kitchen website, and she had told her that grains were one of the most important foods to stay away from. I spoke to Lucy later and she said that Elaine, that wrote the book “Breaking The Viscious Cycle”, thought grains to be the worst. Here I was thinking it would be sugar. Lucy said with moderation, a little sugar would not hurt possibly, but to test it. She also recommended trying potatoes. (Then I remembered one thing that is legal, you can have a couple of pieces of bacon with sugar once a week.)
So, our next food to try was sweet potatoes. Justin has now eaten about 1/4 of a large sweet potato 5-6 times now and has not had any trouble or signs. I have put butter and cinnamon on a bakes sweet potato. I have made him sweet potato fries.
One thing we have not enjoyed about this diet is when we are out or when I do not want to cook, there is pretty much nothing to drive thru and get for Justin. I had read the ingredients in Chick Fil A’s grilled chicken breasts and their new grilled chicken bites. There is sugar in their marinade. We decided to try a salad there with the grilled chicken breast (he uses honey and lemon juice there for the salad dressing). He had no reaction. He has since eaten the grilled chicken bites and recently lightly dipped them in the polynesian sauce. He has done great with this!
Justin LOVES salads! Lucy had mentioned to me that the Paul Newman salad dressings might be good to look into. So I bought the light balsamic and he has been eating that. He has done great!
For six months now, Justin has been looking forward to and counting the days to his “One Year” date! He noticed it was around Easter! So he has been asking for a chocolate easter bunny! I did not think this was a wise decision, but I figured if he had a reaction he wouldn’t ask for it anymore. Justin got a few one inch chocolate pieces (bunny, chick, egg) in his easter basket. They were all gone within 30 minutes! Justin ate all of the chocolate Sunday morning, and today is Thursday. He has been to the bathroom everyday and has seen no signs. Needless to say, he is excited!!! (Please keep in mind that it was NOT a whole lot of chocolate for a person used to eating chocolate.)
I think this gets us caught up with Justin’s progress. I will keep you updated as we try new things! I hope this helps! If you have any ideas, please email me!