Thanks to Todd for seeking advice! We know it’s not easy sticking to such a strict diet. Please read his email below and give us your feedback. Thanks!!!
I am not a mom for the blog but found the site informational and worth reading. I have a few questions on the SCD Diet that I was hoping moms working with the diet could help me with. We have 2 children ages 7 and 11. Neither have Chron’s disease. My son years ago was on the Autism Spectrum with a none diagnosed mild case of Aspersers. We have always been open to alternative medicines so we went to a Dr. who specializes in this practice. He said that my son has food allergies and sensitivities to foods. So he had us stop all Dairy, Gluten, Sugar, Potatoes, and some fruits. This was extremely difficult on my son. My wife found that his diagnoses closely followed the scd diet. She started cooking and following the scd diet for the last 3 years for the entire family. I am concerned for the health of my kids because this diet eliminates a lot of foods that help with vitamin and mineral balances. It is difficult for them at School, Church and parties. My wife is extremely strict on the diet and just recently the Dr. dropped chocolate. I am afraid we are so one sided in the foods we eat that it may be causing other issues. I have done my own testing with Cow’s milk and wheat from a sandwich and have found no issues. My wife feels this is a healthier lifestyle. I feel eating healthy is important but in balance within all food groups. My mom made a comment to me that she feels that since the kids do not have any diagnosed health problems related to food that this is borderline abuse. I forgot to mention my son no longer has any issues with the mild case of aspersers I have always felt it was as he matured it got better. I just want to make sure that since our kids do not have diagnosed health problems that this diet is necessary and safe at their age.
My Opinion: When I first started learning about the SCD Diet for my son, he was 10. I started searching for recipes and information. I found alot more information about the SCD Diet for autism in children than for crohn’s. I STRONGLY believe from what I have learned about the diet over the last almost 3 years, that your son’s condition is better BECAUSE of the diet. Not to say that he couldn’t go off the diet and not see any “immediate” changes going backwards with his problems. But I do believe they would come back over time. My son is symptom free and uses no medication for his crohn’s disease, but I cannot say he is cured and take him off. If he cheats on the diet for very long he has a flare up and has stomach cramps, diarrhea, and bleeding.
Also I do NOT feel like this is abuse of any kind. You and your wife are simply teaching your children how to eat healthy, something everyone of us parents should be doing. Please read our posts on the children having problems with social events and the diet. Yes, this can be hard for them. You also mentioned that you tried bread and cow’s milk? If you don’t have any conditions, you might not see an immediate difference after eating these things, especially after having been on the diet for three years. I know when my son had been on the diet for a year, we tried adding back a few foods, and he had awful flares. Now that he’s been on the diet almost three years, he can get away with eating “some” things occassionally.
I hope this helps some and I am hoping other mom’s will be able to help you as well. If you still have questions or concerns, please email me again or comment here. Good luck! And GOOD JOB to you and your wife for sticking with this for three years!!!