I recently heard from a new mom to our blog seeking advice! Welcome, Carrie! As with all of us, getting starting can be confusing and intimidating. So please read Carrie’s daughter’s story and comment with your opinions. I know I would NOT be where I am today on our SCD journey without advice and support from alot of Moms out there! So let’s pass it on and let us know what you think!
I’m a little desperate for an opinion. Our 14 year-old daughter was diagnosed with UC in November. Her doctors now feel her diagnosis is Crohn’s. They would like to change her meds and restart a course of prednisone which we are half way through. In December we discovered the SCD Diet and I ordered several books on the topic. We began the diet and although we are still learning she thinks it’s helping. For example, I recently discovered through this forum I believe that our yogurt maker is running too hot so it’s possible the yogurt we have been using was not beneficial to her all this time. Although her tests are coming back with some improvement, it seems she needs stronger medications (6mp) at this time. I wonder if hearing from so many moms you would know how many IBD kids still take medications and if this diet has been unsuccessful with some children. I have only read of the positivies of this diet but maybe it doesn’t always help? Her doctor said we can give it a month to see if she will make progress on the diet but he believes her symptoms may become worse in that time. I was so hopeful we would be able to help her and I quite honestly was heartbroken when they explained the medications she would be depending on. She dreads more prednisone. Also, I can’t help but wonder if the iron supplements worsen her symptoms. I know I cannot tolerate them so how do we know that the iron isn’t causing the problems we are trying to avoid? That said I know she needed them. I have never felt less education and more helpless. Any thoughts? I am so very grateful you are willing to listen.
Carrie, thanks for coming to us for help. Please remember these are just my “opinions” from having been through the diet and talking to others. First from reading your story I want to say to use your motherly instincts. I have learned from talking to SO many moms that the doctors do not always know what’s best for our children. I say this from your comment on the iron supplements as well as the dosages and variety of medications. If you say you are wondering if this worsens her symptoms, then maybe you could research SCD foods high in iron and try those.
MOST IMPORTANTLY I would like to stress to you that “one month” is NOT going to be enough time to have your daughter on the SCD diet to see the results you are looking for! Please try the diet for at least 6 months if not more! It takes some children 4-6 weeks to go through the “dying off stage” (please search “dying off stage” on the blog and read posts). Your daughter did not get ill within one month. She’s not going to heal within one month!
From talking to other moms, I have listened to many tell me how the doctors push the medications. I have had moms tell me how they have said no to medications. I have heard there are SO many doctors out there that do not believe in the diet. You commented your daughter already feels like it is working! Yeah! Keep going! I promise it DOES get easier!!!!
I was fortunate my son’s doctor introduced the diet to us. He gave us the option of medication or trying the diet. Justin has been on the diet 3 years now and has been symptom free (after the dying off stage) and medication from as long has he hasn’t cheated! So I cannot give you personal advice on the medications. I know there are moms out there that have had to give there children medications and some are still taking medications, BUT the SCD has helped tremendously! I hope those moms will comment and share with you!
We are here to help! Do not hesitate to contact us with your questions, concerns or just to vent! We’ve all been there!