Debra’s Daughter’s SCD Testimony

What a difference a year makes! In January 2015, after months of suffering from extreme abdominal pain and losing nearly 25% of her body weight, my sweet ten year old daughter was diagnosed with Crohn’s Disease. To say we were shocked and devastated is an understatement, but we were thankful to finally know what was causing her pain. After meeting with her doctor and discussing the three treatment paths available to her, we opted for the Specific Carbohydrate Diet (SCD) and agreed to participate in a 12-week clinical trial through Children’s Healthcare of Atlanta. My daughter was the one who made the decision, and she has been 100% committed and involved from the onset.

On February 1, 2016, we celebrated one year on SCD! And what a miraculous year it has been. We were a bit overwhelmed when we first got started, but took your advice and just began, not worrying about whether or not we had every single item necessary (e.g., the yogurt maker, all the legal ingredients for everything). My daughter has thrived in the past year. She has gained back all of the weight she had lost and more and has grown 3”! Gone are the signs of malnutrition and she is back to being her fun loving self, is always on the go with friends and activities, and most importantly is free of all signs and symptoms of Crohn’s. It has been miraculous as she has achieved this through the diet and was never on any medicines to treat her disease (except for Nexium for a short while at the beginning). Her blood work was fully normal within 3 months of starting the diet and has remained that way throughout.

Our entire family eats SCD and we have created lots of delicious recipes – many replacing our former family recipes as we prefer this version better. While I admit I spend a lot of time in the kitchen, it has been worth it to see my sweet daughter happy and healthy again. One of the things that I think has made it more manageable for us is that my husband went on the diet fully as well, to fully support his little girl (and experience the same feelings that she was going through). Together they have a lot of fun cooking and creating new things. My daughter loves to cook and has really enjoyed making some new recipes and mastering them. I think being able to make her own food, her way, has given her a sense of freedom and control in managing her Crohn’s.

We are so thankful to have found SCD and thankful for the support and encouragement this website gave us during the early stages. For anyone considering SCD, all we can say is that it is worth it! And just like with anything new, it gets easier as you get more experience in what foods are safe and how to work with them. I will have to send some of our favorite recipes to post for others….you can definitely eat well, enjoy delicious food, and be on SCD. Thank you for setting up this website and for being available to us throughout to talk through things. Your support made a huge difference!

Mom Debra

We cannot thank you enough Debra for keeping us updated and sharing your daughters success with the SCD diet! We all know what hard work this is for you as a mom. Keep up the hard work! Sounds like you are doing an awesome job!

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6 thoughts on “Debra’s Daughter’s SCD Testimony

  1. Debra, I am so happy for you and your daughter! Thank you for sharing your story. Mine is very similar 🙂 My daughter, Hannah, was diagnosed with Crohn’s in January of 2014. She was 9 years old at the time. We started the standard course of medication (Pentasa and Imuran), but after only 6 months, she had another big flare up. At that point, I decided to start Hannah on the SCD Diet. It was overwhelming at first, but now, after over 1 1/2 years, it’s just part of our everyday lives. And my daughter feels and looks great! When Hannah was diagnosed with Crohns’, she was in the 10th percentile for height. Six months after starting SCD, she was in the 15th percentile. Now, after 1 1/2 years, she is in the 25% percentile! We must be doing something right! The growth just proves that the diet is helping her digest the nutrients she needs. I love to hear everyone’s stories, and I hope that others are having the same success. Thank you Paige for bringing us all together 🙂

    • Hi Rachel, this is Ana from West Palm Beach. I am so glad to hear from you and to know that Hannah is doing well.
      Bryan is doing better than when we last spoke but not all there yet. I lost all the data from my phone and couldnt contact you anylonger.

      • Hi Ana, so happy to hear from you! I often think of you and Bryan and hope that you are finding the treatments that work 🙂 Are you attending the CCFA Walk on April 30th in Ft. Lauderdale? We do the walk every year and would love to meet you and Bryan.

  2. Thank you Debra for sharing! It is always good to hear the stories. We have been on this journey for now 4 yrs and it’s more a way of life. We have been able to add some food items but go slow and be cautious through this process.
    Wishing you the best!!!
    Ps… I love the CHOA docs!

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