I’m posting this ONLY to help mom’s out there for when/if your child gets bored with the diet or starts sneaking and cheating. I just want to share this so you won’t be so overwelmed like I was!
My son, Justin, is 12 now. He will be 13 in December! OMG! That just crossed my mind and sounds scary! Sorry to stray there! I can’t believe it!!! Anyway, he is still 12 now! A year ago he started having some bleeding and cramps and he told us that he was being bullied at school to eat things he wasn’t supposed to eat. The first time was a girl in one of his classes finally pushed him to eat skittles. He had told us in the past that kids picked at him about his foods being different. So we talked to the teachers and go him moved at the lunch table. Looking back now, I honestly don’t know if this was a case of bullying or by choice and he was not telling the truth. We thought we had addressed the issue back then, but time only tells.
We have noticed pieces of pizza come up missing out of the fridge and evidence coming down to Justin eating it. Please read old posts and see that at we have made attempts in the past to add back some foods. Rice was NOT good! We have added sweet potatoes and he eats them regularly. Well, Justin has been pushing to try more. It’s scary to me! PLUS, not to mention after ALL the time and effort I put into the doing the diet for him!
A month ago, Justin admitted that he had cheated! Augh! He was gone with the cross-country team and on the way back they stopped at Chick-Fil-A. Justin knows there he should only eat the grilled chicken nuggets, fruit cup, and unsweet tea or he could have a salad with lemons and honey. Justin knows what he can and cannot have. He goes to his dad’s every other weekend and has at times had to point out to his father that something he had on his plate was not legal. Well, Justin decided to have a chicken sandwich, fries, AND a milk shake!!!! I almost passed out when he told me that! Justin told me about this on a Monday. He had eaten all of this on a Saturday! From listening to me, Justin thought that his symptoms would have shown up already after eating something illegal. Usually it shows up 3-5 days AFTER consummed. So I pointed out to him that that would not be until Tuesday – Friday. He was hoping since he didn’t have any symptoms that I would let him start eating this when he went with friends.
Justin never did mention having any side effects. But I do know that he is head strong and determined that he wants to be able to eat normally around others, so I would not be surprised if he hid it from us. I did call our GI doctor. We had stool samples and blood work run. Everything did come back normal. After seeing the doctor he also thought he seems ok. PLEASE keep in mind Justin has been on the diet over 2 1/2 years!
I had been told by one of Justin’s counselors at Crohn’s Camp, that Justin is old enough now that he needs to learn to “own” the disease. This counselor had been on the SCD Diet as a child and swore by it that it worked! But… He told me how Justin has to learn to own how he feels if he cheats. My punishing him for sneaking and cheating is not going to change things. He has to accept his flares/pains/bleeding IF he decides to cheat on he diet. This counselor now is not on SCD and is on medication, even though he knows the diet works, he chooses for social reasons not to follow the SCD.
So Justin and the doctor, and I guess me too, have decided that he can eat with friends once every two weeks and see how he feels. We will possibly do bloodwork and see the doctor in 2 months and see where we are. Justin did say that he wants to stay on the diet at home, but socially be normal occassionally.
I will keep you all updated on how things go! I predict that given this freedom he will end up cheating more than once every two weeks. But hopefully I am wrong.
I just hope that by sharing this it will prepare one of you for what is possibly to come! Keep up the GREAT work! I know it’s not easy! You’re a GREAT MOM!!!