Must Have Book!!! PLEASE BE SURE TO READ THIS!!!

If you have been following the blog for a while you might have seen my posts about a teenage girl, Erica Brahan, who has written a short book called, “A Teenager’s Perspective on Food Restrictions – A Practical Guide to Keep from Going Crazy”. (Below you will find the links to purchase the book and a coupon.) I have just finished reading the book. It is a short, paperback book only 83 pages long. Once I started reading it I could not put it down. I SO wish I had had this book and my son and I had read it when we started the diet three years ago!

I know the title says “Teenager’s”, but I would recommend any parent with a child with food restrictions to get this book and read it now. Let’s say I’m not “recommending” it, I’m telling you to get it! It is a must have! It is a teenager’s perspective. It is a teenager that has experienced what your child is going through, will be going through, in her own words. I plan on reading each section WITH Justin and discussing it as we go along. When we read the first edition of the book, Justin was fascinated to hear another child say some of the same things he was going through and feeling the same way.

My son started the diet at age 10. I SO wish we had this book then to prepare us and to make not only him, but me, aware of the feelings, psychological and socially, that would arise. I believe points in this book are things that every child with a diet restriction will encounter. It is encouraging and helps them to have a positive look on their experience.

I went through and highlighted SO many things throughout the book, there is too many good things to share just one. The book explains why the diet restrictions are hard for kids. It gives motivation – “Food restrictions are a marathon, not a sprint.” It talks about your child’s goals and dreams and how this is helping them. There are chapters on planning ahead for eating, dating, and “True Friends Don’t Care” if you have food restrictions! And I think I loved the conclusion most of all.

I want to share the whole book with you, but I can’t do that here. I had planned on writing a post about the book asking each of you to please purchase the book to help out Erica, who just graduated from high school this month. It would be a great graduation gift for her to have us all purchase her book! But, after reading the book I think it will far beyond help Erica, it will be most helpful to you as a parent to get prepared and to help your child realize they are not alone and prepare them to have a positive attitude for things to come.

The book is SO cheap! You will not regret buying it! I promise!

From Edible Attitudes:

Blog Post link about the Book: http://wp.me/p3O34G-co

Amazon eBook Link: http://amzn.to/1r7PBPg

Amazon Paperback Link: http://amzn.to/1r7PGT9

Here is the direct link to Payhip: https://payhip.com/b/JOUh

The coupon code is “SCD KIDS” and it will never expire. It can only be used to purchase the PDF version via payhip. If it is used, the book will only cost a dollar instead of $1.99.

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How Do You Travel With The SCD Diet?

I had a new mom starting the diet for her daughter ask a question we haven’t discussed in a long time. How do you travel with the SCD Diet? Spring Break and Summer vacations are coming soon! Share tips you have learned traveling with the diet with us!

My tips:
When we travel with Justin on trips I always take a big snack bag and cooler for the cold foods. Have a list of groceries of items you KNOW should be at a nearby grocery store where you are traveling too so you can pick them up quick when you arrive at your destination. For example, 100% orange juice, fruits, cheese. Some items I sometimes worry about being where I’m going so I take them with me.
If you have read over my blog or been following for a while, you know one of my BIGGEST MOST IMPORTANT tips that is a MUST for me is keep plenty of frozen meats and options (breads/cookies) handy in the freezer!!! I grab some of these things and put in my cooler to take.
If you have been on the diet for a while (or traveling and just need something to drive thru), there are a few ideas I have used. Chick Fil A grilled nuggets are not completely legal, but are not just horrible in my opinion when you are in a crunch. Chick Fil A fruit cups are great. Keep homemade salad dressings with you when traveling in your cooler and get a salad. If you go into a restaurant that cooks to order (steak house/japanese, etc) you can ask for them to cook a steak or chicken or fish with nothing added and a clean grill (it helps to tell them your child has food allergies then they will pay closer attention and be more careful).
My snack bag is always too full, but I like to be prepared. There are legal SCD snack bars out there to make it easier!

Adding Weight & Calories Per Lucy – Repost from 10/2011

Per a few mom’s request, I called Lucy today to discuss weight gain and adding calories.  She said the main thing to remember is to eat a balanced diet with lots of variety!  She mentioned this numerous times.

A few things she recommended to help add calories, was making the yogurt from half & half, as well as remembering that almond flour is 500 calories per cup (and to note that no more than 4 muffins should be eaten a day).

Lucy said that you should not expect to see any weight gain in the firt 2-3 months on the diet.  I mentioned to her that my son, Justin has been on the diet for 7 months now and has actually lost 5-6 pounds.  Lucy asked if he was he energetic, was I giving him a variety and well balanced diet, and was he eating plenty.  I told her YES!  He eats all the time!  She said that his health was most important, not to watch the weight, it will come.

Lucy said to “Eat enough but eat smart to get healthy with a balanced diet.”  She said to stuff yourself with “stuff” to gain weight is not healthy.

Difficulties starting the diet – Mom ?

Mom Becky’s son is having difficulties starting the SCD Diet.  Please see below what she wrote and respond with your comments and advice.  Thanks!

Mom Becky wrote:

We just started the diet three days ago.   My son has UC and 2 weeks ago reached a peak in a flare that started brewing a couple of months ago.  He is on prednisone now as well as Lialda and Canasa.  Anyway, 2 weeks ago we went on a strict diet of yogurt, rice, chicken, applesauce and bananas.  He was seeming to do well in coming out of the flare.  Then three days ago we started the SCD.  The first day on it, he needed to use the bathroom more often, and a little bit of blood starting showing up again.  By the end of the second day, and this morning he was having more frequent bowel movements and quite a bit more blood.     He is almost 6 foot tall, and has lost so much weight that he is down to 125 pounds.  I am afraid to keep moving forward on the diet for fear he will continue to get worse and loose even more weight.   Has anyone else had this experience or anything similar?
My thoughts:

I have reposted numerous past posts on this topic and hope that these will help!  If you are just starting the diet please go to the “Getting Started” section and “Mom Questions” and read past posts.  I believe these will help you alot.

From being on the SCD Diet and learning from various resources, my first thoughts are about the rice diet he was on.  One of the worst things I have learned are grains.  I learned this after investigating about rice around the one year mark for my son.  He had been on the SCD Diet for one year and we decided to try a few things and see if he could add them back.  Rice was the first thing we tried.  He had sores on his behind and hurt so bad he missed school for a week because he could not sit down.  He laid around all week on his stomach because his behind hurt so bad.  Another quick advice ALOT of children have had is with bananas at the start of the diet.  Please make sure they are VERY ripe!  And some cannot tolerate them at all at the beginning of the diet.

Please be sure to read over the three reposts I did today.  I know it sounds scary with the “dying off” stage and everyone’s “dying off” stage length of time will be different.  My son’s lasted about 3 months. But he was not that sick.  It did get very scary with all of the blood and him having gotten worse at first, but it was worth it!  My son has been on the diet 3 years next month and he is symptom free AND medication free as long as he is strict on the diet!!!

You mentioned your concern about his weight.  I will go back and look for a post on this topic as well from a question from a mom and repost it.  I spoke with Lucy from Lucy’s Kitchen about this topic.  Lucy actually knew Elaine who wrote the “Breaking The Viscious Cycle” book.  Lucy told me to tell moms NOT to worry so much about your child’s weight!  You should be concentrating on their health and how they feel.  The weight will come.  My son was skinny and had lost some weight, but was nothing compared to many I have talked to.  A few moms I know of here from the blog will confess to this advice.  Concentrate on sticking to the diet “strictly” and BE PATIENT.  Your child, on his own time, will start feeling better and getting better.  You can start looking at posts and websites then looking how to add calories and protein to their diet. and adding weight then.  Your goal here is to get them healthier and feeling better.  My son has gained 15 pounds this year!

Please let me know if you have any further questions!  I hope other moms respond and leave their advice.  And you can always email me your number to scddiet4kids@gmail.com if you would like to talk.  GOOD LUCK!  It DOES get easier!!!

Dying Off Stage – Mom ? – Repost from 5/2012

One of our mom’s sent the following question about the “dying off stage”.  Please be sure to comment below the post with your opinions!  This blog is not just about what I think!  Please!  And keep sending in your questions if you have them!  This blog is intended to help us all!

SCD Diet Mom wrote:

My son started his 6th week on tuesday. The d had gone away for the most part, with just a couple 1 time d.
Yesterday, hes went 3 times. Is this die off, or should we look further. I hate to be considering it die off each time.

I am going to answer this by what experience we had.  I remember that Justin seemed to be getting so much better and then one day he would be screaming on the toilet, and blood would be pouring out.  It was a disappointing set back at the time.  Looking back and from reading the book, it was the dying off stage.  Are you keeping a strict food diary?  I STRONGLY believe in doing this.  If there is a set back you can always go back and look to see if their was something new they ate, or look back the few times he has “d” and see if he ate the same thing everytime.  From keeping the diary, I was able to see and note that I needed to take Justin off of cauliflour at the beginning.  He can eat it now and it doesn’t bother  him.  Also on my food diaries I note when he has a BM and medications.  I think this is very important!!!  There is no way for me to tell you if this is the dying off stage or what is going on.  I encourage you to keep a journal of everything and keep strictly to your diet and do not give up hope!  And one day, your day will hopefully come that you will realize, it’s been a week, two weeks, a month with no side effects and see that you are on the road you were looking for!  And then you will find your answer and say, “Oh!  So that was the dying off stage they were talking about!”  When Justin was going through his dying off stage I was calling the doctor on call at 10:30 at night scared he was loosing too much blood.  And now looking back it was just the dying off stage.  Keep up your good work!  You will not regret it!!!

What to expect the first two weeks! – Repost from 9/2011

The first two weeks on the diet will be very hard on the person doing the diet.  After seeing Justin and talking to Kathy and Angie, getting off all the carbs and processed foods will be hard on them.  Justin was very tired and had no energy, but after two weeks it was like a switch was flipped and he was back to normal.

After about 3-4 weeks Justin’s symptoms got significantly worse.  We were wondering if the diet was working or if it was good for him.  Kathy and Angie pointed out they had read online or in the book that there is a “dying off” stage.  So do not get discouraged during this time  Please read the blog on the “Dying Off Stage” under the “Getting Started” category.

PLEASE NOTE:  Mom, this diet will not be easy for you either!  Please do not hesitate to contact one of the other mom’s for support and encouragement!  You will need it!  But I promise one day it will be easier!  Hang in there!!!

Dying Off Stage – Repost from 9/2011

The “dying off stage” can be very hard!  Please do not get discouraged!

I would describe this stage as the body getting rid of all of the bad bacteria and starting to heal.  This is a trying time.  You are spending all of your time and efforts making sure your child is getting all of the legal foods, which is not easy, and it appears that they are not getting much better, but worse.  Please prepare for this and know what to expect.  Be strong, and do not give up!  No one knows when or how long the “dying off stage” will last.  With each child it will be different.  One child it was only two weeks before they were symptom free, for my son it was two months.  But hopefully, you will have seen some days of improvement to give you the strength and hope to push through this trying time and continue with the diet!

I have copied and pasted information regarding the “dying off stage” on the SCD Diet that I have found online.  I hope that some of this will help you through understanding this rough time.  Please let me know if you find any other information that would be beneficial to add to the website as well.  Thank you.

How can I tell tell the difference between die-off symptoms and an intolerance to a new food?

One indicator is the length of time the symptoms persist. Most die-off symptoms last less than three weeks. Some report that if a negative behavior is due to die-off, the behavior stops or improves about one to two hours after giving activated charcoal.

If you think a particular food is possibly bothering your child, you can certainly remove it for a short while and see if things change. If the symptoms abate, you may have found the culprit. Re-introducing the food a little later is a way to verify this.

If your instincts tell you it’s die-off… then ramp up epsom salts baths and/or the charcoal supplements and see if that helps.

During the detoxification period your child’s body has to process the waste products of dying gut pathogens. Children will need plenty of fluids, rest, patience and support… just as when sick with the flu.

Parents frequently report that they are seeing some positive changes (in attention, behavior, etc.) at the same time, usually a clear sign that the other negative symptoms are due to die-off. If the die-off symptoms last longer than a month or are severe, please seek help from a SCD counselor.

Die-off symptoms and food sensitivities are two separate things… but it can be difficult to tell one from the other.

Try not to worry; you are making progress. Soon the symptoms of die-off will lessen or stop, and the picture will be a lot clearer.

You may be able to reintroduce some of the foods that you had pulled when mistakenly thinking they were not being tolerated .

Why do the die off reactions occur?
The same toxins the gut pathogens have been giving off all along, which drive the kids into their world of autism… are all being released now, all at ONCE, as these bad guys bite the dust. Hopefully, you can think of it that way… it’s not your child…. it’s like your child’s possessed by these bad guys who are DESPERATE to survive and are driving your child crazy.

They WANT TO SURVIVE…. so they are sending your child messages to GO GET FOOD. Meaning, they want their Nutrigrain bars and their sugary cookies and all the other stuff that they’ve been thriving on all this time. They KNOW they will DIE if they don’t get it…. so they are willing to go to desperate measures to influence their “host”…. and break down your will to defeat them. This is a life or death struggle for them and they mean to win. You must make up your mind that your plan is to erradicate them from your child’s body once and for all….. and determine you won’t give in to them!

How to decrease the severity of temporary initial symptoms.

Gradually decrease the amount of starches and sugar at least a week before starting

Do not use antifungals at the same time as the beginning of SCD

Take a chelation break if you are doing chelation.

List of possible die off temporary symptoms

Most children will not have these symptoms.

        Flu Like Symptoms 
  • nausea and on rare occasions vomit.
  • dizziness
  • achy joints and back
  • change in bowels (diarrhea or constipation)
  • strange skin rashes
  • runny nose and funny cough
  • headaches
  • behavior changes/irritability/tantrums/short tempered
  • sleep disturbances
Things you can do to make it more tolerable:
  • Epsom Salt soaks in a warm tub
  • Activated Charcoal Capsules (http://www.morethanalive.com/Activated-Charcoal-Powder) for a brief time. Do not take it during meal times.
  • Slowing down the introduction of enzymes (some call this the “low and slow” method).
  • Going slower in the introduction of the SCD probiotics and yogurt. You should wait before introducing these if you have a strong die off symptoms (www.pecanbread.comhas ideas on introducing this yogurt)
  • Following the directions in Chapter 9 and 10 in the introductions of foods.  .

Directions for doing the Epsom Salt baths:

Start with 1 cup of salts in waist deep water and soak for at least 20 minutes. If this is tolerated go up to 2 cups of salts per bath. If it is not well tolerated (hyperness, irritability, whining), cut the dose to 1/2 a cup. or less until you get to a point it is tolerated. It indicates the person is detoxing too fast.