Just a quick tease of an update for my son, Justin’s, pill cam. I’m nervous to hear the results. The nurse did call yesterday and told us that Justin’s bloodwork was perfect! 🙂 The doctor is supposed to read the pill recording next week. I will let you know! I’m hoping for good results to give each of you hope and I believe it will be an encouragement to keep on doing all of your hard work!
Hello, everyone. I apologize for it being SO long since I have posted. I hope each of you will understand. I know each of you knows how exhausting the diet can be for everyone, especially us moms doing all of the cooking/shopping/planning. For those of you new or catching up, my son, Justin, is 14 years old now and started the diet right before he turned 10. He was “officially” diagnosed with Crohns then. He was lucky his doctor was starting the SCD Diet test study and offered it to us. He has been symptom free and drug free since his “dying off stage” on the SCD Diet. He started sneaking around and cheating on the diet after 3 years. About 6 months ago, I decided to let him decide for himself to go off of the diet. I decided he had to “want” to be on the diet for himself. I could not punish him to stay on the diet or make him do the diet. So at first we let him cheat socially, then he pushed me to cheat more and more to where now he has been off totally. I have tried to get him to watch what he eats and choose foods wisely, but I can’t say that he has done that.
Yesterday we had another yearly pill cam. We are anxiously looking foward to hearing from the doctor the results. I believe so far every child that has been on the test study that got off the diet has starting having symptoms again and had to go back on the diet. Justin has been on the diet the longest on the study so we are anxious to see what we find or hopefully do not find. I will update and let you know as soon as we hear. We also did bloodwork and stool tests. Justin is not and has not shown any symptoms since he has been cheating. He did have a mild case when he was diagnosed.
I continue to encourage each of you to continue on the diet fr your child and hang in there. Please contact me if you ever need to talk and need someone to listen. You are not alone. There are plenty of moms out there that understand! If you ever have any questions or have something you would like for me to post and share with everyone, please email it to me, email@example.com.
I will be posting again soon! Hopefully with good news!
As I am sure all mom’s out there are, I have been busy busy busy! So sorry I haven’t posted in so long! I have two in home businesses and my craft one is doing great and keeping me busy. Basketball has started and all three of my children are playing this year. My oldest, which is a senior this year, had already broken in nose playing. We have an average of 7 games a week between all three. Whew!
Please keep in touch everyone! I ran across this recipe this morning in Facebook and had to share it. Sounds like it would be yummy this time of year. If you get to try it please comment and let us know how you and your child liked it.
How everyone is doing good!
Carrot Cake Bites
Good morning! It’s been a while since I have posted. Please be patient with me. My new craft business has really taken off and with it going into the holiday season I am VERY busy! I saw this recipe this morning on Facebook and had to share it so you can start planning for Halloween! Please search on the blog for “Halloween” and see other ideas! And if you have a new idea to share PLEASE email it to me so I can share!!! Thank you!!!
Caramel Apple Nests:
From Mom Rachel:
My daughter, Hannah, was diagnosed with Crohn’s in January of this year at age 9. After 6 months in remission, she had her first flare up in July. Steroids and the SCD diet were started simultaneously. She was slowly weaned off steroids in September, but never fully bounced back to normal. Now, one month later, she is in a full flare-up, running to the bathroom with diarrhea several times a day. I’ve changed her diet to limit food intake to stews, soups, and bone broth. But nothing seems to be helping. Has anyone else experienced this? Has your child had to go back on steroids while following the SCD diet? Does anyone have any additional suggestions?
Today I am reminded of how thankful I am that my son was diagnosed with Crohns Disease and not cancer or another terminally ill disease. I am also so thankful that he has a doctor that puts his patients first and offered my son the opportunity to try the SCD Diet to control his disease instead of medication.
A long time friend of mine has been caring for her 16 year old daughter for over a year battling cancer. Her daughter passed away last night. I cannot imagine the loss of a child. I know she is in a better place and no longer suffering.
Hug your children and be thankful!
This time of year we look forward to eating pumpkin muffins, bread, pie… Don’t you just love fall!!! This recipe looks yummy!
5 cups almond flour
3 cups cooked pumpkin*, pureed
½ cup lard, butter, or coconut oil
1 cup raw honey
1 teaspoon sea salt
1 teaspoon baking soda
2 teaspoons cinnamon
1 teaspoon allspice
½ teaspoon cloves
2 cups of raisins
Mix all ingredients. Fill lined or greased unlined muffin tins 3/4 full. Bake at 350 degrees Fahrenheit for 15-17 minutes. Enjoy!
*Cooked pumpkin: Cut pumpkin lengthwise. Scrape out seeds. Place cut side up on cookie sheet. Bake at 350 degrees Fahrenheit for about an hour. Scrape out cooked pumpkin.